It was about this time five years ago that I first started noticing the symptoms that would lead to my diagnosis of having MS.
My neurologist in Pittsburgh was good. My neurologist here in Boston is better. The neurologist in Pittsburgh assumed that I had relapsing-remitting MS. That’s perfectly reasonable. For four years, I thought that I was having ups and downs in my MS. My new neurologist told me that my profile was more like transitional-progressive MS. It means my symptoms won’t come and go. Instead my symptoms can be expected to be progressive instead of up and down.
It makes me wonder if all of the ups and downs I’ve faced over the past few years really were the MS or if it was something else. I can’t exclude that it could have been in my head.
Now I’m trying to do some research on TP MS. It’s really rare to find any references to it other than things that are cursory.